Every day may be different and bring new opportunities to learn about your child. Some days your child may need support to help them with emotional challenges like anxiety or anger, on others they may need more functional help with sleeping, eating or behaviour.
Parenting can make you feel a range of emotions. It is okay to feel that some days are hard and that others will bring joy. Your child may amaze you with something new that they have learnt, and you may feel all your emotions in a big way. Be assured, you are not alone.
We use communication to connect with others, develop relationships and have our needs met.
Your child will express their thoughts, needs and wishes with you through the use of both verbal and non-verbal communication, such as smiling, pointing or leading you to where they want to go. They may also show you how they are feeling, for example they might stamp their feet and cry when they are upset or angry and they might smile and laugh when they are feeling happy.
If your child finds communicating their thoughts, needs and wishes difficult, it might cause them to become angry or frustrated.
There are different strategies you can use to help you communicate with your child. I may be trial and error at first, but keep going with it and it will help you to learn what your child is trying to tell you.
These tips could be helpful to try:
Try to avoid:
At times, your child may behave in a way that could be seen as being disruptive. This may happen when a child's needs are not being met, for example, lashing out if they don't understand what is happening next, or refusing demands if they feel overwhelmed. Trying to understand the reasons behind your child or young person's behaviour is the best way you can help support them in meeting their needs.
If your child has co-occurring conditions or multiple complex needs they could need more support and require more specialist resources. Here are some commonly seen behaviours, and methods to help cope with them:
Impulsive Behaviour
Having impulse control prevents us from reacting too quickly, or undertaking risky behaviours that might put us in danger. When a child has difficulties with impulse control they can often be viewed as naughty, or badly behaved, but differences with impulse control can be a common part of neurodiverse conditions.
Ways to support your child include:
Compulsive Behaviour
Compulsions or obsessive behaviours start as a way of trying to reduce or prevent anxiety and worries. For example, a child who fears germs may wash their hands repeatedly. Many children who have obsessive repetitive behaviours realise it's irrational, but cannot stop acting on it 'just in case'. This can be very distressing for young people and their families.
Ways to support your child include:
It's important to get help if you think your child's compulsive behaviour is impacting their life. See your GP, or find NHS talking therapies services near you.
Demand Avoidance
Many neurodivergent children and young people struggle with demand avoidance, which looks like they are avoiding everyday demands and expectations. It's important to remember your child isn't trying to frustrate you, when they display this behaviour, it's because they are having a hard time trying to control their environment.
Ways to support your child include:
Meltdowns
Meltdowns are not 'temper tantrums'. They are a reaction to a highly distressing situation or environment and can be very physically tiring and emotionally draining for a child.
Meltdowns can look like:
Shutdowns
If meltdowns are equivalent to the fight response, then shutdowns are similar to the freeze response.
They are often the result of situations with high demand in one or a few of the following areas:
Shutdowns can look like this:
Meltdowns can sometimes turn into a shutdown, where a child may show outward expressions of distress to begin with, then withdraw until their stress levels have reduced and they can begin to recover.
While you can't always predict what events will lead to meltdowns and shutdowns, planning ahead when you know a situation may cause worry can help to dampen down triggers that might lead to a meltdown. For example:
It can be distressing to support someone during a meltdown, so knowing what usually calms and soothes your child in advance is useful.
The best remedy is to give the person the space to rest, recuperate and recover without placing additional demands on them. After the incident, when your child has fully recovered it's worth gathering some information if your child is able and willing to talk about what happened, to be able to work out what to look out for in future.
Life for neurodivergent children and young people can present challenges that cause stress and anxiety. Examples of worry-inducing events include:
Neurodivergent conditions involve such a varied range of differences, that methods to support one child with ADHD for example, might not work on another child with the same condition. It's worth experimenting with your child to find out what strategies and resources they find soothing and calming.
Moving between places, often called a 'transition', can be a particularly stressful time for neurodivergent children, so it's useful to have some methods of distraction or calming up your sleeve to support them. We'd recommend:
Executive functioning helps with processing information, planning and organising. Some neurodivergent children may have differences in executive functioning, which might mean they find organisation and time keeping more difficult.
It's important to remember that your child could find many of these differences frustrating, so it's useful to talk about any things they find hard during the day and ways that you can support them. Examples include:
Find out more about organisational skills (executive function)
As a parent of a neurodiverse child, you know that any behaviours like stimming, tics or bursts of energy can be reactions that your child has little control over. Unfortunately, the rest of the world doesn't always understand this, although more people are becoming aware of the signs of neurodivergence.
The most important thing is that you support your child on occasions where they might communicate distress, big emotions or enjoyment in the best way for you both. If you are worried about other people's reactions, you could consider getting your child a sunflower lanyard, a visible clue that the wearer has a hidden condition.
Benefits of a sunflower lanyard include:
Let us know what you think!
We've been working together in Norfolk and Waveney with families and professionals to put together information, advice and resources that are helpful to families. Let us know what you think, and anything we could change or add to make it even better.
If you live in Norfolk
You can contact the Healthy Child Service team by calling Just One Number on 0300 300 0123 or texting Parentline on 07520 631590. Our opening hours are 8am-6pm Monday-Friday (excluding bank holidays) and 9am-1pm on Saturdays.
If you are 11-19 you can text ChatHealth on 07480 635060 for confidential advice from one of our team.
If you live in Waveney
Norfolk SEND Local Offer provide information and advice on services for young people with additional needs in Norfolk.
Suffolk SEND Local Offer provide information and advice on services for young people with additional needs in Waveney.
Mencap is a national charity who support people with learning disabilities. They offer a free Learning Disability Helpline with advice and guidance. Call 0808 808 1111 to speak to a trained professional.
Kooth offers online counselling, advice and emotional well-being support for anyone aged 10-18, seven days a week until 10pm.