Selective mutism (SM) is an anxiety-based disorder where a child or young person who is capable of speech becomes unable to speak in specific situations. For example, a child may be able to talk freely with their immediate family when at home but are unable to do so when guests visit, or when their immediate family are in a different setting, like school.
Some people prefer to call this situational mutism, as this helps to show that this is not a choice and instead is an anxiety-based condition which is person and situation-specific. SM is different from shyness, which is a personality trait that can affect anyone at any time and is not a neurodevelopmental difference. SM must also be present for at least one month beyond the first month of school.
There are many positive responses you can offer a child or young person with SM to help them through their anxiety, and it is important to work closely with your child's school to offer shared support and understanding. If you feel that your child or young person may be experiencing this, you can contact your GP who can make a referral to the community speech and language therapy service for additional support.
Selective mutism is often described as a fear of speaking and somebody with SM may identify with an intense feeling of dread or panic at the thought of having to speak in specific situations. SM is often accompanied by signs of anxiety, like a racing heartbeat, muscular tension, tight chest and throat or difficulty breathing.
Behaviours you might notice include:
As a result of the anxiety experienced, a child or young person with SM may also appear frozen, have a blank expression, and/or withdraw socially. It is important to understand that these behaviours are a response to the anxiety they are experiencing. You should never put pressure on a child or young person to speak in those situations where they are unable to do so or make someone feel it's their fault or choice.
Selective mutism can also affect more than just speech itself, as anxiety may affect other communication methods, such as non-verbal communication (facial expression, eye contact, gesture) and written communication.
Selective mutism can start at any age but usually occurs in early childhood. If a child or young person with SM experiences negative responses to anxiety, their difficulties can persist into adulthood. It's often first noticed when a child starts to interact with others outside their family, for example at nursery or starting school.
The cause of selective mutism is not always clear and no single cause has been identified. It's important to focus on supporting your child or young person with selective mutism and offering positive responses.
Selective mutism is not a neurodevelopmental difference like autism. It's an anxiety-based response that can be present at any time and does not occur across all settings and may not be lifelong.
Neurodevelopmental differences (including autism) are a way of describing differences a child or young person's brain may show when processing information and are present in the early developmental period and across different settings, like school and home. Some neurodivergent children and young people may also experience selective mutism.
Recognising that selective mutism is an anxiety response, like a phobia, can help to understand why a child or young person can speak in some situations and not in others. Acceptance, understanding and patience are all required when supporting a child or young person with selective mutism.
It's important to remove any pressure to speak and instead offer the following positive responses that can help to reduce anxiety:
At Home or Out and About
At School
It's also important to work closely with the school to support your child or young person. This may include speaking to the special educational needs & disabilities coordinator (SENDCo) and class teacher to ensure you are all using the same positive responses. Some specific to school may include:
Let us know what you think!
We've been working together in Norfolk and Waveney with families and professionals to put together information, advice and resources that are helpful to families. Let us know what you think, and anything we could change or add to make it even better.
If you live in Norfolk
You can contact the Healthy Child Service team by calling Just One Number on 0300 300 0123 or texting Parentline on 07520 631590. Our opening hours are 8am-6pm Monday-Friday (excluding bank holidays) and 9am-1pm on Saturdays.
If you are 11-19 you can text ChatHealth on 07480 635060 for confidential advice from one of our team.
If you live in Waveney
Norfolk SEND Local Offer provide information and advice on services for young people with additional needs in Norfolk.
Suffolk SEND Local Offer provide information and advice on services for young people with additional needs in Waveney.
Mencap is a national charity who support people with learning disabilities. They offer a free Learning Disability Helpline with advice and guidance. Call 0808 808 1111 to speak to a trained professional.
Kooth offers online counselling, advice and emotional well-being support for anyone aged 10-18, seven days a week until 10pm.
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